{"id":3688,"date":"2011-05-31T10:10:34","date_gmt":"2011-05-31T15:10:34","guid":{"rendered":"http:\/\/www.wheelchairmommy.com\/?p=3688"},"modified":"2011-05-31T10:40:58","modified_gmt":"2011-05-31T15:40:58","slug":"nf-pregnancy-my-experience","status":"publish","type":"post","link":"http:\/\/www.wheelchairmommy.com\/closed\/2011\/nf-pregnancy-my-experience\/","title":{"rendered":"NF & Pregnancy: my experience"},"content":{"rendered":"

I don’t think I’ve ever talked about it on here because it’s never really been a problem in my life, but I have something called neurofibromatosis (NF). In fact, I know so little about it that I had to look up how to spell it. Here is the definition from Kidshealth.org<\/a>.<\/p>\n

Neurofibromatosis (NF) is a condition that causes tumors to grow on nerve tissue, producing skin and bone abnormalities.<\/span><\/p><\/blockquote>\n

Anyways, everyone has different probelems\/experiences with it. I believe this can range anywhere from a few tumors and spots to HUGE tumors all over and major learning delays and in a very small percentage, cancer. What generally causes the problems is that the tumors grow. Mine have multiplied but have not grown. Mine are also only on the outside and we have not found any internally.<\/span><\/p>\n

How am I affected? Well, every time I get pregnant I get more fibromas\/tumors on parts of my body that are generally covered. (back and stomach) They seem to go away afterwards but not all of them.<\/p>\n

Years ago I only had one on my stomach and my doctor actually thought it was a keloid. Years later I noticed 3 in a row on my leg, so my then doctor tested the tissue and it came back as being NF. I believe he said it was NF1. What prompted him to check? The “keloids” in addition to multiple cafe au’lait spots. (little-big brown spots). You can see the 3 spots and a cafe au lait spot below. You can also see several tiny spots near the cafe au lait spot that are not always there.<\/p>\n

\"20110531-102216.jpg\"<\/a><\/p>\n

\"20110531-102226.jpg\"<\/a><\/p>\n

May was\/is NF awareness month and I wanted to do a post earlier, but I forgot. That’s how little importance it is in my life. I know there are many out there that are DRASTICALLY affected by it, so I wanted to at least mention it.<\/p>\n

That and at Lucas’ last doctor appointment it was suggested to see a geneticist based on the number of cafe au lait spots found on his body. \u00a0Will doesn’t have any. I’ll keep \u00a0you updated. Let’s hope his is as mild as mine :).<\/p>\n","protected":false},"excerpt":{"rendered":"

I don’t think I’ve ever talked about it on here because it’s never really been a problem in my life, but I have something called neurofibromatosis (NF). In fact, I know so little about it that I had to look up how to spell it. Here is the definition from Kidshealth.org. Neurofibromatosis (NF) is a […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[132,147],"tags":[119,120,122,121],"class_list":{"0":"post-3688","1":"post","2":"type-post","3":"status-publish","4":"format-standard","6":"category-family","7":"category-wheelchair-stuff","8":"tag-neurofibromatosis","9":"tag-nf","10":"tag-nf-and-pregnancy","11":"tag-nf1","12":"entry","13":"has-post-thumbnail"},"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p5zEve-Xu","_links":{"self":[{"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/posts\/3688","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/comments?post=3688"}],"version-history":[{"count":0,"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/posts\/3688\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/media?parent=3688"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/categories?post=3688"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.wheelchairmommy.com\/closed\/wp-json\/wp\/v2\/tags?post=3688"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}